Miracle Baby. 22q. Congenital Athymia. Transplant Warrior. Tubie. Former Trachie. Preemie. Icon.
#LucaRising
Luca has an ultra rare condition called Complete DiGeorge Syndrome.
He is one of the estimated 15-20 babies born in the States per year to have this condition. As a result, he was born without a thymus, the epicenter of the immune system. On July 12, 2022 he underwent a thymus transplant at Duke University Hospital. Following his successful transplant he has now left isolation and joined the immunity community.
Rare diseases like Athymia don't just impact the patient, they impact the entire family. Each family facing the diagnosis must put their life on hold in order to give their athymic baby a chance to live. Mental, physical, and financial strains burden the families beyond measure. Raising awareness, aiding in financial contributions, and offering support helps each family not only survive but thrive.
Raising a baby is challenging, raising a medically complex rarity like Luca is a challenge beyond belief. Caring for him and giving him the life he deserves and needs would not be possible without our village. From the bottom of our hearts, thank you to our friends, family, and supporters worldwide for everything. It's an honor to now help other families rise too. Please contact us for more information on how you can help.
Luca Rising is dedicated to offering support for families impacted by congenital athymia. Your contributions can make a positive impact. Join us in supporting this important cause today! Together we can help to create a world that is healthier, safer, and more prepared for children like Luca.
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